Welcome to the PRIONConnect Patient Insights Network

  

Join patients around the world in building the PIN community.

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Find out about research studies and clinical trials.

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Advance research and speed development of new treatments.

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our voice matters. The PRIONconnect Patient Insights Network (PIN) amplifies the voice of patients to help researchers and drug developers find better treatments, faster. Register now to become part of a research-ready PIN with participants from around the world.
 
PRIONconnect serves people and families affected by or at risk for all types of prion disease, including Creutzfeldt-Jakob disease, fatal familial insomnia, and Gerstmann-Straussler-Scheinker disease.
 
We believe that patients own their data and have the right to share it in a manner that protects their privacy. Through the PRIONconnect PIN, we connect participants with advocacy organizations, clinicians, researchers and drug developers for the benefit of all.
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Y
our voice matters. The PRIONconnect Patient Insights Network (PIN) amplifies the voice of patients to help researchers and drug developers find better treatments, faster. Register now to become part of a research-ready PIN with participants from around the world.
 
PRIONconnect serves people and families affected by or at risk for all types of prion disease, including Creutzfeldt-Jakob disease, fatal familial insomnia, and Gerstmann-Straussler-Scheinker disease.
 
We believe that patients own their data and have the right to share it in a manner that protects their privacy. Through the PRIONconnect PIN, we connect participants with advocacy organizations, clinicians, researchers and drug developers for the benefit of all.

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