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mall Cell Carcinoma of the Ovary, Hypercalcemic Type (SCCOHT) is a rare, highly malignant tumor that primarily affects young women. The median age of diagnosis is 24 years old. Approximately two-thirds of patients with ovarian small cell carcinoma have hypercalcemia. The SCCOHT Patient Insights Network (PIN) allows patients diagnosed with SCCOHT, their families and researchers to gather and share information and health history in a safe, confidential, online database.
 
This registry will help us better understand the major health issues affecting individuals with SCCOHT, to improve the natural history for the diagnosis, gain insight into treatments, and to help us recruit for future pre-clinical research studies and therapeutic clinical trials, while educating the community and raising awareness around the disease.
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S
mall Cell Carcinoma of the Ovary, Hypercalcemic Type (SCCOHT) is a rare, highly malignant tumor that primarily affects young women. The median age of diagnosis is 24 years old. Approximately two-thirds of patients with ovarian small cell carcinoma have hypercalcemia. The SCCOHT Patient Insights Network (PIN) allows patients diagnosed with SCCOHT, their families and researchers to gather and share information and health history in a safe, confidential, online database.
 
This registry will help us better understand the major health issues affecting individuals with SCCOHT, to improve the natural history for the diagnosis, gain insight into treatments, and to help us recruit for future pre-clinical research studies and therapeutic clinical trials, while educating the community and raising awareness around the disease.

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