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Welcome to the Noonan Syndrome Foundation’s patient registry for individuals affected by Noonan syndrome and Noonan syndrome with multiple lentigines (AKA: LEOPARD syndrome). Your willingness to share information about yourself and/or your child can help us make a difference in the future.

This database will be accessible to researchers around the world interested in studying Noonan syndrome and Noonan syndrome with multiple lentigines (AKA: LEOPARD syndrome).

For more information please contact the Noonan Syndrome Foundation at info@teamnoonan.org.

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About Us

The Noonan Syndrome Foundation is a 501(c)3 non-profit charitable organization that provides support to those affected by Noonan syndrome and Noonan syndrome with multiple lentigines (AKA: LEOPARD syndrome).

 

The Noonan Syndrome Foundation wants to work with families, physicians, and researchers to help improve medical care and empower patients and families through knowledge and support. For more information on the Noonan Syndrome Foundation, please visit www.teamnoonan.org.