Welcome to the GM1

Patient Insights Network

  

Join patients around the world in building the PIN community.

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Find out about research studies and clinical trials.

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Advance research and speed development of new treatments.

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Join the GM1 Patient Network to accelerate treatment for GM1 Gangliosidosis! 

Collecting the health information of those impacted by GM1 gangliosidosis is essential for advancing medical research and developing drugs for treatment.

You can help build momentum by joining this shared network, and by contributing your data about GM1. All data is de-identified and highly secure, and is an extremely valuable tool for understanding the patient population and planning clinical trials. As a patient, you can also receive useful information regarding research opportunities as they become available.

Research is advancing on multiple fronts globally. By pulling these efforts together into one registry, we bring ourselves closer to an end to GM1 conditions. Please join us now!

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Join the GM1 Patient Network to accelerate treatment for GM1 Gangliosidosis! 

Collecting the health information of those impacted by GM1 gangliosidosis is essential for advancing medical research and developing drugs for treatment.

You can help build momentum by joining this shared network, and by contributing your data about GM1. All data is de-identified and highly secure, and is an extremely valuable tool for understanding the patient population and planning clinical trials. As a patient, you can also receive useful information regarding research opportunities as they become available.

Research is advancing on multiple fronts globally. By pulling these efforts together into one registry, we bring ourselves closer to an end to GM1 conditions. Please join us now!

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