Welcome to The FPIES Foundation Global Registry!
The purpose of this registry is to create global database where doctors, researchers and families can connect to better understand FPIES, Food Protein Induced Enterocolitis Syndrome. The goal is improved diagnosis, management and treatment options; as well as empowerment of patients and families through knowledge, connections, and continued support.
The FPIES Foundation is partnering with Patient Crossroads to bring you a first of its kind 'FPIES Foundation Global Registry.' Registered families will have opportunities to participate in research and informational surveys and immediately see the results of those surveys. All patient information is kept confidential and FPIES families will always own their information and be able to opt-in or opt-out of participation.
Knowledge is power and joining The FPIES Foundation Global Registry will help enhance knowledge of FPIES, providing your child’s information for FPIES research as doctors strive to understand this rare condition.
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The FPIES Foundation Global Registry
The FPIES Foundation is an Incorporated 501(c)3 Non-profit Foundation whose mission is dedicated to overcoming the challenges of Food Protein-Induced Enterocolitis Syndrome by offering tools for education, support, and advocacy to empower families and the medical community. Please visit: www.thefpiesfoundation.org for more information on FPIES.
We are honored to introduce your latest initiative, the FPIES Foundation Global Registry.