The purpose of this registry is to create global database where doctors, researchers and families can connect to better understand FPIES, Food Protein Induced Enterocolitis Syndrome. The goal is improved diagnosis, management and treatment options; as well as empowerment of patients and families through knowledge, connections, and continued support.
The FPIES Foundation is partnering with Patient Crossroads to bring you a first of its kind 'FPIES Foundation Global Registry.' Registered families will have opportunities to participate in research and informational surveys and immediately see the results of those surveys. All patient information is kept confidential and FPIES families will always own their information and be able to opt-in or opt-out of participation.
Knowledge is power and joining The FPIES Foundation Global Registry will help enhance knowledge of FPIES, providing your child’s information for FPIES research as doctors strive to understand this rare condition.