Welcome to the Fatty Oxidation Disorders Patient Insights Network

  

Join patients around the world in building the PIN community.

START MY PROFILE

  

Find out about research studies and clinical trials.

LEARN MORE

  

Advance research and speed development of new treatments.

SHARE

T
The FOD Patient Insights Network (PIN) was created to build a comprehensive database of children and adults living with a fatty acid oxidation disorder (FOD), including MCAD, LCHAD, VLCAD, SCAD, TFP, GA 2/MADD, CPT 1 & 2, CUD, CACT, HADH, HMG, MCKAT, 2,4-Dienoyl-CoA reductase, and unclassified FODs. The goal of this PIN is to better understand the various presentations of FOD disorders, including when well, ill and under stress. It also serves to determine specific clinical and research areas that might encourage improved treatments for those affected by a FOD. Lastly, this PIN serves to connect and empower our FOD families around the world so they do not feel alone in their challenges and have access to the most current treatment information to enrich the quality of life.

By completing the registry questions and sharing your experiences, you build upon the current information about FODs, increasing the potential for new research and clinical knowledge to lead toward more effective treatments or cures.
Frontpage Slideshow | Copyright © 2006-2011 JoomlaWorks Ltd.

Click here to register now!

T
The FOD Patient Insights Network (PIN) was created to build a comprehensive database of children and adults living with a fatty acid oxidation disorder (FOD), including MCAD, LCHAD, VLCAD, SCAD, TFP, GA 2/MADD, CPT 1 & 2, CUD, CACT, HADH, HMG, MCKAT, 2,4-Dienoyl-CoA reductase, and unclassified FODs. The goal of this PIN is to better understand the various presentations of FOD disorders, including when well, ill and under stress. It also serves to determine specific clinical and research areas that might encourage improved treatments for those affected by a FOD. Lastly, this PIN serves to connect and empower our FOD families around the world so they do not feel alone in their challenges and have access to the most current treatment information to enrich the quality of life.

By completing the registry questions and sharing your experiences, you build upon the current information about FODs, increasing the potential for new research and clinical knowledge to lead toward more effective treatments or cures.

Phones and tablets may default the first letter to uppercase.

LEARN MORE