Welcome to the Dandy-Walker Alliance

Patient Insights Network

  

Join patients around the world in building the PIN community.

START MY PROFILE

  

Find out about research studies and clinical trials.

LEARN MORE

  

Advance research and speed development of new treatments.

SHARE

T
he new Dandy-Walker Patient Registry (or PIN which stands for Patient Insights Network), allows people diagnosed with Dandy-Walker, their family members and researchers to gather and share information and health history in a safe, confidential, online database.
 
This registry will help us better understand the major health issues among individuals with Dandy-Walker, improve the natural history for the diagnosis and help us recruit for future pre-clinical research studies and therapeutic clinical trials all while educating the community and raising awareness regarding diagnosis, study of the causes and treatments.
Frontpage Slideshow | Copyright © 2006-2011 JoomlaWorks Ltd.

Click here to register now!

T
he new Dandy-Walker Patient Registry (or PIN which stands for Patient Insights Network), allows people diagnosed with Dandy-Walker, their family members and researchers to gather and share information and health history in a safe, confidential, online database.
 
This registry will help us better understand the major health issues among individuals with Dandy-Walker, improve the natural history for the diagnosis and help us recruit for future pre-clinical research studies and therapeutic clinical trials all while educating the community and raising awareness regarding diagnosis, study of the causes and treatments.

Phones and tablets may default the first letter to uppercase.

LEARN MORE