Welcome to the

cureCADASIL

Family Registry

  

Join patients around the world in building the PIN community.

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Find out about research studies and clinical trials.

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Advance research and speed development of new treatments.

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elcome to the cureCADASIL Family Registry! CADASIL is a rare, genetic disease for which there are currently no effective therapies and no known cure. We hope that the cureCADASIL Family Registry will provide a forum for CADASIL patients and families from all over the world to share their personal experience with CADASIL.

With your help, this registry will make CADASIL information accessible to researchers and to other registry participants who also share their information. There is so much the medical community can learn about CADASIL through information shared here by patients and families.

As a registry participant, you will be able to take health surveys and see others experience with CADASIL. For example, you can access information to answer common questions such as "How many people experience migraines?" "Do others have difficulty swallowing?" In addition, participants may elect to receive information about clinical trials, research studies, and updates from the cureCADASIL Family Registry.

Click HERE to view the CureCADASIL Family Registry Infographic

Envision the cure. Embrace the challenge!
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W

elcome to the cureCADASIL Family Registry! CADASIL is a rare, genetic disease for which there are currently no effective therapies and no known cure. We hope that the cureCADASIL Family Registry will provide a forum for CADASIL patients and families from all over the world to share their personal experience with CADASIL.

With your help, this registry will make CADASIL information accessible to researchers and to other registry participants who also share their information. There is so much the medical community can learn about CADASIL through information shared here by patients and families.

As a registry participant, you will be able to take health surveys and see others experience with CADASIL. For example, you can access information to answer common questions such as "How many people experience migraines?" "Do others have difficulty swallowing?" In addition, participants may elect to receive information about clinical trials, research studies, and updates from the cureCADASIL Family Registry.

Click HERE to view the CureCADASIL Family Registry Infographic

Envision the cure. Embrace the challenge!

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