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W
elcome to the Adrenal Insufficiency (AI) Patient Registry. By joining our registry and providing information about your AI experiences and symptoms, you'll be assisting in the collection of much needed data on this often misunderstood endocrine disorder. This registry will benefit the AI community, as we connect with each other, as well as researchers and companies interested in developing new treatment options.

The registry will help answer some frequently asked questions:

  • How many people have AI?
  • How many people with AI have had an adrenal crisis?
  • Does AI affect other things like weight, emotional health, and learning?
  • What are the common symptoms?
  • What types of medications are used to treat AI?
  • What tests are done to confirm an AI diagnosis?

We hope the data collected from this registry will inspire a greater interest and understanding into the causes and effects of AI, which in turn will lead to advancements in treatments to improve quality of life.

This registry is open to:

  • Patients or parents of children diagnosed with AI
  • Patients or parents of children still seeking a diagnosis of AI
  • Patients or parents of children with conditions which can or do cause AI
  • Individuals who have lost a family member with AI

Please consider helping all of those in the AI community by participating in this registry. We can't do it without you!

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W
elcome to the Adrenal Insufficiency (AI) Patient Registry. By joining our registry and providing information about your AI experiences and symptoms, you'll be assisting in the collection of much needed data on this often misunderstood endocrine disorder. This registry will benefit the AI community, as we connect with each other, as well as researchers and companies interested in developing new treatment options.

The registry will help answer some frequently asked questions:

  • How many people have AI?
  • How many people with AI have had an adrenal crisis?
  • Does AI affect other things like weight, emotional health, and learning?
  • What are the common symptoms?
  • What types of medications are used to treat AI?
  • What tests are done to confirm an AI diagnosis?

We hope the data collected from this registry will inspire a greater interest and understanding into the causes and effects of AI, which in turn will lead to advancements in treatments to improve quality of life.

This registry is open to:

  • Patients or parents of children diagnosed with AI
  • Patients or parents of children still seeking a diagnosis of AI
  • Patients or parents of children with conditions which can or do cause AI
  • Individuals who have lost a family member with AI

Please consider helping all of those in the AI community by participating in this registry. We can't do it without you!

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